Life Starts Now.

Living each day to the fullest, because we know first-hand just how fragile life can be.

Saturday, October 1, 2011

A Frustrating Perspective.

Imagine this:

Fix someone food 4 to 5 times a day.  Different foods from what everyone else in the family eats.  Special foods.  Interesting foods.  Expensive foods.  Foods that are easy to swallow.  Tasty foods that may spark a toddler's senses.

And then on top of that, you have to worry about calories.  You count how many calories are in each tablespoon of butter (100,) or in 2 tablespoons of peanut butter (190,) and you try to calculate how many calories are actually taken in....because if he doesn't eat enough calories, you're going to have to push food through the tube in his belly.

And then the little precious that you fix the food for- doesn't eat.  Not one bite.

Repeat this.  A billion times.  And then wonder how this tube is ever going to come out.

1 comment:

  1. You are not allow! You know people you can talk to. Those women who have gone before you. They are a good resource, if not for ideas then for support! I love you! Don't give up and Keep believing! ~Jodi